Archive for the ‘General’ Category

They Faxed What To You?!

Friday, April 1st, 2011

4-01-2011

This could be a funny entry, but I think I have lost my sense of medical humor after many years of erroneously trusting doctors staff to use old-fashioned common sense, basic powers of deduction and/or simple reasoning skills. Yes, I know. Trust me, I know it’s a silly (and sometimes dangerous) assumption; I just continue to expect intelligent file handling and proper sharing of the correct information when my physician refers me to another specialist! To be fair, most of the staff get it right most of the time, but??????

At my last appointment with my RA doc (the follow-up appointment which had originally been scheduled for November 2010 and cancelled/rescheduled so often that it took place March 29, 2011!), the in-house lab did an extensive panel of blood tests. Several hours later, one of the nurses called to explain that some of the results were back – my ALP (Alkaline Phosphatase) was sky-high & Doctor W wanted me to see a Gastroenterologist soon. (Hmmm – same story about 12 months ago.)

I’ve put off contacting the Gastro’s office as I am still fighting a nasty bout of IBS. (Actually, I am betting that is why the lab work came back wonky.) Someone at Dr. W’s office sent my lab results and contact info to the Gastro; his nurse called me today to set up an appointment. A hint of puzzlement in her voice tipped me off – - – -something wasn’t adding up for her. Not sure why, but I asked “What is the date on the lab-work you are referencing?” “Uh, erm, it seems to be July of 2010!” No wonder she was confused!

I immediately called Dr. W’s office, went through the customary dance with the automated phone service and managed to snag a real, live person. (Pressing “0″ sometimes over-rides the system and lets you contact a person instead of a “leave a message, we’ll get back to you” recording.) As briefly as possible, I explained that someone at their office had contacted Dr. G’s office and supplied them with July 2010 lab results instead of the relevant March 2011 lab results! I expected some embarrassment and an apology – what I received was a blithe explanation along the lines of “Oh yes, that happens often. The lab results do not reach a patients file for a couple of days ~ if our staff contacts another physician right after we’ve seen you here, the current results aren’t available to them yet.” OK. . . .so this seems to be common knowledge throughout the practice? With that in mind, it doesn’t occur to the staff to seek out up-to-date lab results before contacting another physician? Groan! Somebody, anybody, please tell me this sort of error doesn’t occur with predictable regularity with this clinic!!! (Except, obviously, it does!)

I Kid You Not!

Monday, March 28th, 2011

I Kid You Not!
3-28-2011

I did the two-week shopping alone a few days ago. That is an activity normally shared with Tom, as it doesn’t take long for the cart to gain enough weight to start pushing me around the store, instead of me pushing it. However, the weekend sort of got away from me. Tom agreed to pick up the “Christy Cripplers” (aka 20 lb. bags of birdseed for the outdoor flock, 27 lb. tubs of cat litter for the indoor herd and multiple 12-packs of Dr. Pepper) on his way home from work so that I could tackle the rest of the list solo.

Along with the usual milk, butter (well. . . .almost butter), paper products and ingredients for 14 meals, there were the finally-ran-out-of items such as horseradish sauce, lemon juice. . . .and Tom’s deodorant. I knew what aisle it was on (they haven’t shuffled the store recently – I hate it when the market decides it is time for that selling gimmick!), I knew what it looked like……. or did I? I stopped the cart at the appropriate location, reached for the item, and – Oh, wonderful! Someone thought it would be a great idea to change the packaging design of the entire Old Spice line! Instead of grab-and-go, I found myself staring at a sea of unfamiliar labels, attempting to locate Old Spice High Endurance Fresh Scent! Finally found the item in its new ‘uniform’, and proceeded to the other items and aisles on my list.

Today, Tom pulled out the new dispenser and paused to study the label; I assume his first thought was “this isn’t right” :) Then he started laughing and showed me the reason why: on the front label, in very small letters, are the words “Same Stuff: Different Label”. Cute, but it pales in comparison to the new verbiage on the back label! I can only assume that Proctor & Gamble hired the writers at www.thinkgeek.com to “spice up” the text: “Contains odor-fighting “atomic robots” that “shoot lasers” at your “stench monsters” and replaces them with fresh, clean, masculine “scent elves”. I kid you not! Wonder if the powers-that-be at Old Spice/Procter & Gamble are sitting at their desks waiting for the first commentaries to arrive? LOL – at least someone on the team has a sense of humor :)

Welcoming 2011 in the ER

Saturday, January 1st, 2011

We planned a quiet, laid-back New Year’s Eve; a home-cooked meal, a DVD and “maybe” staying up until midnight. Thomas (IV) had been fighting a migraine for two days, and truly only wanted peace, quiet & reduced pain; he retreated to his space after dinner, hoping sleep would help, and we decamped to our bedroom.

By 10:15 or 10:30pm, I had opted for sleep while Tom (III) was ready to watch the rest of the movie we’d started. I may have been asleep for 10 minutes when Tom woke me up. Thomas had made his way downstairs for help; he was cold and clammy to the touch, extremely pale and heaving up lunch/dinner/ et al. We arrived at the local ER around 11:45 pm and it took several exams and two doses of a medicine “cocktail” to make the nausea subside and the headache recede (not disappear). By 2 am on New Year’s Day, we were on our way home. Thomas was surely “seeing stars” through most of this, but it wasn’t the traditional (and illegal) fireworks being set off to celebrate the begining of 2011!

All is well now, except that his headache is still lurking like a beast ready to pounce. I’m hoping he got the last of 2010 out of his system and 2012 will be healthier for him! (Note:I must have still been tired when I wrote this! As Shannon pointed out, I’m hoping 2011 will be a better year for him!)

Off with her head (erm, hand)!

Tuesday, October 26th, 2010

O.K., confession time. With the guys off at work all day and ”The Hand” sending out post-surgical messages I cannot repeat in polite (or even semi-polite) society , my “plan” was to escape boredom and pain by napping as much as possible.   However,  my self-appointed ‘nurse cats’  have decided  it would be a good idea (and very helpful, of course) to keep the injured hand warm if I  happen to doze off!  This ‘good deed’ consists of either Diva or Cassidy draping their considerable weight over the elevated hand , centering themselves over the bandage, and falling into a deep, virtuous sleep! 

I’ve started fiddling around with the bandage. Hey! The surgeon did say we could move to a smaller bandage after 3 days!  I’ve  re-wrapped the Ace bandage several times and in several unorthodox ways , as well as cutting away a few parts of the ‘cotton batting’ which had become rather frayed and disreputable. None of this activity has produced much in the way of comfort or improvement :(    The biggest problem is that some subconscious portion of my brain has decided that the main discomfort is a result of having the ring finger firmly bound to the little finger by layers I’ve been way-too- chicken to delve into. (Actually, I had worked my way down to three layers of ‘cotton batting’, all of which are firmly attached to me by post-operative bleeding. Nope – no way am I fooling around with that!   By the time Tom arrived home from work, I had latched onto a much better plan; catch my delightful neighbor/Ace Nurse at home, if I could, and have her redo this whole mess, hopefully leaving only the ring finger bandaged!

I’m thrilled to report that the Ace bandage is now banished, best neighbor/nurse freed me from the layers of felt/batting/whatever and released the trapped little finger!  There’s a strip of “magical gauze with mystical healing  & anti-bacterial properties”  (that’s an extremely loose quote from Nurse Kathy) that she left in place directly over the incisions . . . . .I was rather relieved, as said strip seems to be firmly attached to me by the aforementioned bleeding!  Still, with a fresh gauze wrap and bright pink cohesive tape wrap, I’m feeling freer and somewhat stylish. LOL!

Good morning – rough evening!

Thursday, October 21st, 2010

Tom  and I had to report in at the surgical suite of The Hand Center of San Antonio at 6:00 this morning.  Ugh!  Granted, it didn’t give me a long time (thirsty and hungry) to wait or become nervous, but we were sure doing a lot of yawning!

Everything went like clock-work, and I’ve seldom met a warmer, friendlier group of clerks, nurses & technicians.  The in-take clerk (usually the worst of the “just-the-facts-ma’am, sign here..here…here, and there, “go sit and wait to be called” crew) was warm, welcoming, and even shunted some of the lengthy paper-work towards Tom to be filled out once she noticed that the pen & I were engaged in a small battle of wills.  (I try to have a Christy – friendly pen with me at all times, but I didn’t even bother to take a purse with me; just my ID, insurance card and med list.)

Pre-Op was fairly empty when I was taken back to be prepped. All of the nurses were sweet and “un-rushed” (If it isn’t a real word, it ought to be) and I drew Christy (yep!) as my prep-nurse. Went through the standard litany of questions (designed to avoid errors, so I don’t mind them at all!), but Christy didn’t employ the usual Drill Sargent approach :)   Got “comfortable” in my surgical gown (yeah, riiiiiight) and another nurse came along to start the requisite IV; lucked out again, as she slid the needle in and taped everything down without a twinge!  I was handed a marker and initialed the area Dr. Rust would be working on – LOL!  Met my anesthesiologist, who was a tad surprised to hear that all he’d be using the IV line for (aside from the standard Ringer’s Lactate) was a light bit of sedation; Dr. Rust & I had agreed on local injections at the base of the 2nd and 3rd fingers.

One of the pluses of avoiding general anesthesia is that I went straight from the OR to Level 2 Recovery, where I spent a very short time being monitored for wonky blood pressure (it does it every time!) and a little longer sipping dark roast coffee and sitting in a recliner before Tom came in to take me home! I was settled on our bed by 9:30 am.

That’s a good thing, because my surgeon encountered more than she expected.  After she removed the cyst, she found a large rheumatoid bony growth that had to be cut away (remember my “things can hide in x-rays” note a couple of posts back? Bingo!) . Hence, I apparently have a V – shaped incision instead of the small, straight cut she’d planned to make. It also means that the pain level is several notches higher than I expected; when bone-cutting is involved, it definitely ramps up the Ouch Factor!

I won’t be making miniatures for a couple of weeks, but I’ll feel better in a couple of days :)

Run up to surgery # . . . whatever!

Wednesday, October 20th, 2010

Back on September 1st, I met with Dr. Stace’ Rust about the knot/lump/whatever which has been forming on my left hand ring finger, palm-side and just below the first knuckle.  It has been growing for several months……..not actually sure how long, as I have a bad habit of trying to ignore “little things”, even when they get in the way of normal mobility or make tasks harder. (It’s called Surviving RA!)  I finally quit ignoring this one when it occurred to me that I might not be able to remove my wedding ring or engagement band without having them cut off  by a jeweler!  Tom accomplished the removal with liquid dish soap, a great deal of pulling and some mashing of the knuckle; that was enough to convince me I needed to find a hand surgeon!  ( The wizard who performed three reconstructive surgeries on my right hand, the last one several years ago, has since switched to the more lucrative field of plastic surgery!! )

During my mid- August appointment with my rheumatologist, I asked him who his favorite hand surgeon was.  I was lucky on several counts; her practice is located close-by, she was accepting new patients, and I could get an appointment with her relatively quickly!  At the first visit (Sept. 1st) , she had several x-rays taken to rule out a bone chip or other solid mass. Nothing there, except a rather crooked finger. (Take note . . . .things can hide from an x-ray!)  Examining the finger, she posited three possibilities; rheumatoid nodule, benign tumor or cyst.  We could confirm or rule out door number three by having her attempt to use the typical, rather large needle & syringe to drain it.  Yes, I let her – yes, it is a fairly uncomfortable procedure – yes, it was a cyst.  Caveat: it could still return, at which point we would need to discuss surgery.

September 2nd, when I removed the band aid, the cyst had refilled and enlarged a bit!  Rats!   Back to Dr. R’s ~ time to get me on the surgical schedule. I saw her on Sept. 13th and my calendar turned out to be much more of a problem then hers!  Sept. 17th-19th was the Society of American Miniaturists (SAM’s) Wonderful  Workshop Weekend. I was signed up for two workshops, haven’t been to a real Miniatures Show in over a year, this was the firs Workshop Weekend at the new Temple, Texas venue  and I  Was Going!  Sept.21st & 22nd were appointments I had already booked with medical appointments and  Sept. 24th was our last round-trip to Houston & Baylor University for follow-up on Tom’s injured left eye (we’re rotating him back to the excellent medical team here in San Antonio, and I was not going to make that drive in surgical bandages)!  Finally settled on October 21st, which sent me into an energy-draining quest to complete everything on my “You need two hands” list before the chosen date. I almost finished everything on the list, too!

Lots of good will and maybe one small spill*

Saturday, October 9th, 2010

(* With apologies to Dolly Parton, lyricist & singer – “Best Little Whorehouse in Texas”)

SAS (San Antonio Shoemakers) hosted their 21st annual  Siesta Valley Ranch Walk today (10-9-2010, hosting thousands of participants at no fee.  T-shirts and a free bar-b-cue meal (with sides) await all those who arrive at the finish line. Participation in this event is a long- standing tradition in our Son-in-Law’s family; we were  introduced to this three mile (or six mile – hiker’s choice) walk/hike  through  beautiful ranch land in the Texas Hill Country three years ago. The vistas are gorgeous, the beautifully groomed horses make me ache to ride at least once more and the buffalo herd pastured along the walking course are simply majestic.  It is a working ranch, so the trails can be a bit rough, steep or rocky (or all three at once.) Also, as it is a working ranch, one needs to keep a sharp eye out for the cow patties while enjoying the cliff faces, valleys and lush green pastures , or face a good clean-up session :)

 My first ’Ranch Walk’ (with Tom & Thomas,  joining three generations of Moores)  was o the 19th annual walk (2008) ~ for me, it was a blatant challenge to the double amputation surgery (already scheduled)    of all ten toes. All family members caravaned to the ranch (about 10 miles west of Medina, TX and started the walk together. I successfully completed the hike with my leg braces, cane and Tom’s sturdy arm, but I definitely slowed down the parade! 

2009 was the 20th Anniversary walk, and Tom III was the only Blackburn presence. Thomas was working an abysmal job with outlandish hours, and I just plain goofed!  I soooo much wanted this to be my “Victory  Walk” (post-surgery and extremely mobile), but had committed myself to being a facilitator at a  state-wide  Community Education convention before I knew the date of the Ranch Walk and felt obligated to keep my promise :(  

This year, all three Blackburns were able to attend, and we arrived at the ranch ahead of the Moore clan. Making the walk together (and watching rapidly growing grand-daughter Sara and her cousins enjoy the wide-open spaces while still within parental view)  are a special part of the walk, but I knew we needed to start the walk ahead of them. The surgery has done amazing things for my mobility, but I’m a bit wobbly right now and knew I would hold everyone else back.  Turned out that was a good plan. I handled rough terrain pretty well, kept a death grip on Tom on the loose & rolling gravel parts. . . .and about 2 miles into the walk (striding along on turf beside the main path) I took my mind off of what I was doing for a moment. Yep – flat out fall, stopped by my left ring finger catching on something (rock? tuft of turf? Who knows!) and my left arm!  Took a .5 inch by 3.5 inch strip of hide off of my left elbow and forearm, and bruised both knees!  That was the moment I was glad my Sara was somewhere behind us and unable to see Grandma do a wipe out! I got back up (with the help of both Toms and a gentlemen also sporting a cane (His comment was “If it hadn’t been you, it would have been me!” – sweet) and finished the final mile. . . . .then made a ‘pit stop’ at the on-duty ambulance for a clean-up and a gauze wrap to hide the messy patch from young Sara!  Fortunately, the relative size of a bandage hasn’t occurred to her yet, so it didn’t raise any alarms:)

I had a wonderful time, and the experience also convinced me that my legs & ankles are way too weak. It’s time to look into well planned physical therapy to turn this around! Oh, another HUGE treat. . . .Thomas won the dice toss at the end of the walk!  Since he is more a fan of younger-style footwear (and has no need of a purse), the certificate he received will buy me a much-need new pair of black SAS shoes!!!!  (They’re the only ones my orthotics will fit into!)

Only semi-organized and leaving tomorrow!

Thursday, September 16th, 2010

My annual “Miniatures Fix” – the 3-day SAM’s (Society of American Miniaturists) convention, starts tomorrow afternoon – I’ll point The Scarlet Lady NE  around 9 am and hope I’ve mapped out the new location in Temple, TX well enough :)  I finally made my way upstairs to my Tower (workroom)  today to pack a full tool kit for the workshops I am enrolled in! Fairly light packing, actually, as I am (of course)  enrolled in  both of Sandra Manring’s flower classes – a half-inch scale magnolia blossom centerpiece tomorrow evening and a one-twelfth scale rose bouquet Saturday morning. (Why, Oh why does she always teach the smaller scales on the day I’ve driven for hours?!)

Then I did the hard part: my friends & roommates (Amanda & Alexandra Burt) are flying in from Maryland tomorrow to attend the Wonderful Workshop Weekend.  They’re bringing paint brushes and any necessary paints in their check-in luggage, but the “sharp, pointy objects” could/would  pose problems in either carry-on or checked baggage.  I promised to put together kits containing anything else they might need. . . .but couldn’t remember which classes they had chosen!  After I had metal rulers,automatic pencils,X-acto knives, replacement blades, small clamps, needles/needle threaders and straight pins, curved and straight blade scissors, files and sanding sticks in several grits, mini cutting boards, wire cutters, tweezers, forceps, several sizes of embossing tools, needle-nosed pliers, Super Glue , Tacky Glue and Gawd-knows what else packed into two labeled  gallon zip-lock bags, I surveyed the result.  My only question. . . .how on earth have I accumulated three or more of everything?! !!  (Secondary question: with all this: why can’t I find what I need when I’m at my workbench?! LOL!)

My suitcase is downstairs, and my outfits for travel/workshops/banquet are chosen, but I’ve opted to pack tomorrow morning. . . . .I’ll probably be sorry for that decision.  It’s hard to leave home without my laptop (yep – I’m a 62 year-old geek!), but there simply won’t be any time to use it!  I’m taking my iPhone and iPad  (whichwill allow me to keep track, a bit, of incoming messages and provides a Kindle reading link if I have a moment)- – -hope I remember to pack the chargers!!

G’night, all. Tom’s alarm goes off at 5:30am, and that is when I will start my day, too!

The good, the bad & maybe the ugly

Monday, August 30th, 2010

Got really shaky/wobbly while trying to get ready for my appointment with the neurologist this morning. Not just my legs, but my arms, too. (Not for the first time.)

I have a diagnosis. MRI showed moderate osteoporosis at the base of the spine (which the daily Forteo injections I just started should help correct). The nerve conductivity study at my first visit showed some neuropathy and muscle weakness. Extensive bloodwork done at my last visit shows “remarkably good levels” (for a long-term RA patient) of various usefull cells, critical vitamins, minerals, etc. Wonderful. The tests ruled out a lot of ‘nasties’ (Multiple Sclerosis, among others) – Great. Diagnosis: Vasculitis, caused by the years of RA. My veins/capillaries & arteries have become inflamed and restricted; hence the frequent wobblies when I walk and the increasing shakiness of my hands and arms, plus the occasional difficulty breathing. Reduced blood flow=reduced oxygen & slower nerve impulses. The bad news is that there’s nothing we can do about it. . . .my next appointment with him is a year away:( Meanwhile, I will have to get serious about doing the exercises to (hopefully) improve the muscle tone in my legs. The sudden falls on uneven (or even) terrain? Yeah, that’s probably here to stay, unless I slow down to a snail’s pace or delete several of my chores – - – neither is likely to happen in the near future!

Cats

Sunday, August 29th, 2010

Thought I would share I quote I love:

“If a fish is the movement of water embodied, given shape, then a cat is a diagram and pattern of subtle air.”
-Doris Lessing